The Importance of In-Services
for Your Child's Classmates
by Kathy Giordano
"Because of her, my life has
completely and totally changed." This is taken from a school report that a
young girl wrote concerning her struggle with Tourette Syndrome and a
person who had presented to the class about this and related disorders.
She discussed her difficulties with the teasing from her classmates and
the gratitude she feels as a result of an in-service provided to her
classmates. There is no better compliment than this.
Many parents are reluctant to have
a person discuss Tourette Syndrome with their child's classmates. I
understand their reluctance. Typically if a parent makes a request that
someone speak to classmates, it is because some of them are teasing the
student for symptoms. Parents and students are afraid that admitting the
student has a disorder will only give the other students ammunition to
increase their harassment and teasing.
However, giving the behaviors a
name, and comparing them to things that are familiar such as asthma,
diabetes and even hiccups, helps classmates understand. Understanding
leads to acceptance and even support. Children can be very accepting if
they have an opportunity to hear an honest explanation followed by a
chance to ask questions.
Soon after a presentation, the
difference in the child's social-emotional life is very often astounding.
Typically, teasing is reduced dramatically and frequently, classmates will
defend the student against other students' teasing as well as the
disapproval of teachers who are not aware of the situation.
In-services are not only important
as an antidote to teasing, but also they say to the child with Tourette
that he or she does not have to hide symptoms or keep them a secret. Too
often secrets are related to shame. Understanding and honestly discussing
symptoms can be an important step toward acceptance of having a disorder.
Since symptoms can vary, are inconsistent, and are vastly misunderstood,
acceptance becomes a very important component to having the student self-
advocate for services as he gets into high school, college and the work
force.
Not telling the classmates allows
them to continue to believe that the noises, movements and behaviors are
purposeful and are intended to annoy others as well as disrupt the class.
Many teachers feel trapped in a difficult position, needing to defend the
child because of his symptoms but also needing to respect the
confidentiality wishes of the child's parents. Students can relate to
having hiccups, scratching an itch, or sneezing at inconvenient times and
finding themselves reprimanded or made fun of by others. Giving
information to the students helps them relate to the uncontrollable
symptoms, and helps them gain an understanding.
Presenting information to
classmates can be a tough decision, but an in-service given when children
are younger has a better chance of increasing acceptance and supportive
behavior from classmates. It also will be sending a clear message to your
child that you don't feel ashamed of him or his disability, and neither
should he.
For more information on
arranging in-service presentations, click the "Chapter Services" button on
the left.